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Diabulemia: Effective NHS to treat or eating disorder with type 1 diabetes

Zohra Allana

At its worst, Zohra Allana told her that she would "die."

The 25-year-old has diabulemia; When someone with type 1 diabetes deliberately does not take their insulin to control their weight.

"I am very horrible, emaciado", it says to Radio 1 Newsbeat, when passing photos of vacations of the past year.

The condition is not medically recognized, but now the NHS England is putting just under £ 1m in two pilot projects to help people like Zohra.

Type 1 diabetes is an irreversible autoimmune disease that requires constant care; People who need it need their insulin to stay alive.

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Zohra Allana

Legend of the image

"I thought that I thought it was great … I never want to go back to this one"

Zohra was diagnosed with type 1 when he was 19 years old: "I was in my apartment near Uni and I just collapsed."

"So, my companions took me to the nearest hospital and when they said they had type 1.

"I practically screamed the hospital."

The JDRF type 1 diabetes charity leader estimates that 60,000 people aged 15 to 30 live with T1 in the UK.

Experts in diabetes and mental health experts consider that up to 40% of these can restrict their insulin to a "fear of fat."

"That first year I was dealing well," recalls Zohra. "Eating, injecting, going to union, but when I realized that I was putting weight due to insulin is when it slid."

Eventually I was not taking insulin.

She remembers her holiday in Romania in October 2018 being more like a "nightmare," "I could not control my bladder, I could barely walk and continue with my friends."

"I just seemed very ill."

Prior to this trip, she said: "He came to a point where he wanted to admit me – they said he was going to die."

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Zohra Allana

Legend of the image

Zohra had this picture as his screen saver when he was boarding school

Shortly after his trip, he was admitted to a food disorder unit where he spent eight weeks being treated by Diabulmia.

Zohra was already getting attention from the Kings College Hospital in London that launched its new outpatient service in September 2016.

They work closely with the South London hospital and Maudsley (SLaM) that has an inpatient food disorder unit. That's where Zohra was admitted.

Professor Janet Treasure is a consultant at SLaM: "We are seeing more and more things over time, but because there was not enough group power among diabetic and eating disorder clinics, we reached optimal levels to do with respect to the disease. "

The people who run these pilots hope to change this.

Legend of the image

"All body organs can suffer," says prof. Janet Treasure

Thanks to the treatment she received, Zohra started taking her insulin.

"Once you eat and inject, do not feel hungry – I did not feel completely in a long time.

"I was sleeping, I did not sleep for four years."

In the case of Zohra, you can see obvious weight loss, but experts believe that it is hidden by thousands of patients.

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Lesley Davison

Legend of the image

Megan's parents want to know their story to help other families

The family of Megan Davison never realized that he had a mosquito. The 27-year-old died in August 2017 after suffering from the disease.

He left a suicide note of six pages. Her mother Lesley says: "I felt there was no hope for her, that there was nothing in place to help people with their condition."

Professor Jonathan Valabhji is the National Clinical Director of Obesity and Diabetes at the SNS England: "There is a spectrum for the disease here: a much greater proportion will suffer less obviously."

The second driver in Bournemouth will see more moderate cases. Those, like Megan, who have a normal body size but who are not yet taking their insulin.

These projects arrive almost 18 months after Newsbeat and the BBC Three Diabulimia documentary: The Most Dangerous Ego Disorder in the World.

Immediately, Tim Kendall, NHS England's national mental health director, told Newsbeat that people were "waking up" to diabetes.

For Zohra, life is underway. She has a new job and is anxious for her future: "It's not about weight anymore for me, it's about living a life.

"Weight will always be a problem, but I need to weigh that which is most important and always comes out of life," instead of trying to achieve that ideal ideal body that is not even entitled to. "

If you need help or support to do any of the issues raised in this article, you can check the pages of the BBC Board.

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